New approach to strengthen dementia support for Islanders and families
The Alzheimer Society of PEI is developing a new approach to care supported by the province's 2025 Health Innovation Fund, to help families better understand and respond to behavioural changes associated with dementia.
These changes can include repetitive vocal or physical expressions, changes in daily activities (i.e. sleeping or personal cares), verbal or physical expressions of risk, or changes in mood and personality. Often, caregivers are left trying to understand what is happening and how best to respond.
For many families, a dementia diagnosis can change daily life in ways they never expected. As symptoms progress, caregivers often find themselves navigating new challenges while trying to support a loved one and maintain a sense of normalcy. That is why more Islanders are reaching out for support.
In 2025, the Alzheimer Society of PEI served 1,108 Islanders, up from 737 in 2023. During the same period, the number of times Islanders turned to the Society for support increased from 3,030 to 7,076.
“Doing this work, I have seen people struggle and be devastated by the disease, and I have seen lives turn around by having the appropriate level of support," said Jaime Constable, CEO of the Alzheimer Society of PEI. "Help can literally change people's lives."
The Alzheimer Society has spent the past several months working with a steering committee of home care leaders, geriatric specialists, clinicians, and other health-care partners to develop a more coordinated approach to behaviour support. Input received from clients and caregivers will also help ensure their new approach reflects the real experiences and needs of Islanders living with dementia.
As a part of this work, beginning this fall, all new and existing clients will participate in a behaviour screening process to help with earlier identification of changes that affect the quality of life and well-being of both the person living with dementia and their caregiver.
All families will receive education about behavioural changes linked to dementia and why they happen. Support will then be tailored to each person's needs. For those experiencing less significant changes, the focus will be on proactive, person-centred care including activity kits, social engagement and overall well-being strategies.
For families facing more complex challenges, they will be provided the opportunity for an in-depth assessment which will support caregivers in tracking responsive behaviours over time to identify factors that may be contributing, like the environment, needs, and preferences of the person living with dementia. This information will inform personalized intervention plans, helping families and care providers monitor progress and adjust supports as needed.
The work is also strengthening collaboration across the healthcare system. By connecting with home care teams, geriatric specialists, clinicians, the provincial Dementia Specialty Team and other partners, the Alzheimer Society is co-creating clearer pathways to accessing help and support for people living with dementia and their caregivers.
The Alzheimer Society of PEI is a registered non-profit organization dedicated to supporting Islanders living with dementia, as well as the family members and friends who care for them. Through counselling, education, support groups, social programs, and public awareness initiatives, the Society provides valuable resources and services to individuals and families across the province.
As September marks World Alzheimer's Month, with World Alzheimer's Day recognized on September 21, Islanders are encouraged to connect with the Alzheimer Society of PEI to learn more about available supports, access helpful resources, and to explore the enhanced behaviour support services offered.